Last weekend was busy with two parties to celebrate Bree's arrival and her baptism. She surprised us all at her baptism. I had figured she would not be too happy with water being poured onto her head, however, since I had been washing her hair that way since she has been casted, she thought this was hysterical. She then proceeded to dip her own hands into the baptismal font and baptize her father and sisters! Father and all in attendance were cracking up laughing.
Last night we took Bree's second casts off and had her ortho appointment. Despite us thinking her feet looked so much better, in actuality, her rigidity was not that much improved. After consulting with his partner, her doctor decided that we should proceed to surgery sooner than later. While we are disappointed, we know this will only get her walking sooner. Originally, we had hoped she would only have to have the soft tissue surgery as opposed to the boney surgery (talectomy). Both doctors agreed that the talectomy would be the more beneficial surgery and with the soft tissue surgery, there are many recurrences that end up requiring the talectomy at some point in the future. We requested that both feet be done at the same time to get it over with. This will be possible, but the first time they can do this is November 20th! So, no casting for the next 5 weeks and then we will resume casts for three weeks prior to the surgery in order to stretch her tissues back out again. They assured us that the cast we had done already were not a waste as her right knee responded extremely well. Bree of course was loving life last night with no casts on-she was so excited. She actually slept all night without a peep in her crib! It is just going to pain us to have to resume them in 5 weeks! But, maybe by then she will understand and speak English better and we can communicate better with her.
Bree has also had a few playdates since being home. She truly enjoys being around other children. She is so good at sharing. It is so much fun to watch her play with "new" toys and discover what they do. She wasn't so sure about play doh, but eventually got comfortable with the feel of it.
2 comments:
I love the pictures..boy o boy are we making up for being slow in the past..
Congrats on the baptism and congrats on her progress...whether small or big..its progress.
love ya.
don't forget the little people in your life..(me)
Bree is absolutely adorable!
I've been following your blog for sometime now & only recently did I reread & realize she & I had the same surgeon & the same procedure. I have Arthrogryposis in all four limbs & I grew up near Findlay. I had one clubfoot & Dr. Munk did a talectomy on me when I was 9 months old.
I was so happy to read her knee responded to casting so positively. I only have one knee truly affected but casting did nothing for it since it was so tight.
Feel free to write me!
-Tracey
tracey@amcsupport.org
traceyschalk.webs.com
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